Friday, January 15, 2010

Flashback Friday

Baby Clayton, early 2004
still doing his best to learn to eat from a bottle!

I'm betting a lot of you Special Needs moms out there are recognizing that "preemie head"! Amazing how great Clayton's head shape has turned out considering he laid in that bed for so many months!

Tuesday, January 12, 2010

The View From Here


I've been going through my old videotapes this week. Only two of them were actually labeled (GASP!) and I'm trying to get my memories better organized! Clayton's been having a ball watching all of the more recent ones, but his demeanor changed when we started watching the ones of him in the NICU. In fact, I had to turn them off he got so upset . . . and after watching just those few minutes of us in the NICU and also watching some tapes of when Clayton had gotten so heavy, I couldn't help but have these thoughts:

**Watching us with Clayton in the NICU, I think one thing: NAIVE. I can remember how we felt back then. If we could just get him out of the NICU, we would be homefree!!! And now we know it was really only the prologue of the story of his life . . .


**I AM SO ANGRY about the weight gain that he had in 2006! What the heck was his doctor thinking??!!! And what the heck were we thinking???? And did everyone else think we were nuts, just didn't bother to tell us? I look at him on those tapes and he is struggling to move! How much ground did he lose in physical therapy because of all that extra weight? HOW. MUCH. GROUND???!! His breathing was labored as well. No telling how much sooner he could have come off the oxygen if only he didn't have so much weight to labor over. In fact, I told Brian not to even watch the tapes because I knew he would get upset over it.
**I don't care what you say about telepathy, our son has a definite SIXTH SENSE about things. He clues into my mood like a radar gun--if I'm upset, he's the first to know. If I'm thinking about someone I haven't thought about in a month, he asks about them. And when he sees himself on a TV screen, in an intensive care unit, he immediately gets upset. I assured him it was just pictures of Baby Clayton. He wanted no part of it! Sobbing upset, he was! And nothing horrible was happening on the screen. But he knew. Deep down, he knew.

Sunday, January 10, 2010

Reminder

Tonight I was feeling quite frustrated and sorry for myself with the sleep situation/night time routine around here. Although he's come a long way, Clayton still struggles to go to sleep each night and actually stay asleep. On a good night, it's an hour ordeal. And most nights, it's closer to two. Add Jackson to the mix and it's exasperating! But then I jumped over to the Kidz blog and read this post. Nothing like some perspective to slap you in the face, not to mention a HUGE reminder from the Lord!

I lift up my eyes to the hills—
where does my help come from?
My help comes from the LORD,
the Maker of heaven and earth.
He will not let your foot slip—
he who watches over you will not slumber;
indeed, he who watches over Israel
will neither slumber nor sleep.
Psalm 121:1-4

Lord, please be my right and left hands (and whole entire body for that matter) during these night time sagas! I figured out that I can't do it alone!!

Friday, January 08, 2010

Flashback Friday

January 2006,
when our only outings were weekly trips to my grandparents' house, church, and of course the doctors' offices

Thursday, January 07, 2010

Clayton--These Days

I look at this picture and only one thought comes to my mind: I. LOVE. HIM! He is so precious and he is growing and changing these days just about as fast as Jackson is! Such a little boy!! Let me just tell you about Clayton these days . . .


**He doesn't miss anything that goes on around him--he soaks up every detail and then as soon as the coast is clear of strangers, he regurgitates it all back to us over and over and over and over . . . and just when you thought he had forgotten about that particular event or detail, he brings it up again! One example: I bought a red purse. As soon as he saw me carrying it for the first time he said "it's like Gail's." Gail is my aunt and 90% of the time, she does carry a red purse. Who knew he had even paid attention to that?

**He is quite the comedian. He does things on purpose because he knows it will get a laugh. And once you laugh the first time, you might as well get settled in, because he'll keep on with the same thing over and over!

**He's very obessive about routine and order. (Wonder who he gets that from???) To the point of getting bothered when we go a different route to a common destination. Church, for instance. There's two ways we can go and it's about the same distance. BUT, you can only go one certain way with Clayton in the car because going on the other street means the questions start flowing on "where are we going?" "where are we going?" And he'll even laugh if he thinks you've gone the wrong way. Again, he's so observant, he knows the route to almost all our destinations and deviating can't be tolerated!

**Most people know he's never been a TV watcher except for just a few select things: Little People, Big World (the dad has crutches); any Scooter Store commercial (wheelchairs galore!); and any live concert or music video (parent approved, of course!); and Gaither Homecoming Music on Saturday nights. BUT, he's suddenly discovered you don't have to wait until Saturday to watch the Gaithers. You can buy a DVD and watch them on demand! Brian found one we forgot we had on Christmas Day--Clayton was glued to the TV, playing his drums along with the music. And now, he wants to watch them ALL. THE. TIME. I had to go buy more so we didn't have to watch the same one over and over! The other thing he's discovered on TV is home movies. I had to watch several the other day to get them labeled correctly. I was just going to pop them in and out, but he wanted to watch every single minute and had more fun reliving the moments than he did during the actual live event!

**For a while now, he has been on this "tell _____ that." It doesn't matter what happens or what I say or what he says. It's always followed by "tell Jackson that" or "tell Daddy that" or "tell Granny that" or . . . well, you get the picture. I spend most of my time saying "why don't you tell Jackson?" or "he's right there, he saw it" or "I'll tell them when I see them." Man, I'm a sucker--always following his orders!

**He still loves riding in Daddy's truck and loves looking out the window to wait for whoever's coming next. If it was warm enough, he'd be on his bike every day.

**He craves independence. If I'm busy taking a shower, folding clothes, etc., he wants to do his own thing. And for him now that means watching out the window and listening to music, watching the Gaither videos, or kicking his legs while laying on the bed and looking out the window (he still gets great exercise doing this!). And if I don't leave him alone, he reminds me to--"Momma go in there." "Momma go take a shower." He wants me OUTTA THERE! Independence. It's a very good sign!

Tuesday, January 05, 2010

Reading Aloud


I'd love for you all to take a look at my post for today over on the Kidz blog. Some of my best memories of fourth and fifth grade are of my teachers reading aloud (thank you Mrs. Benton and Mrs. Doolin!). And reading aloud has certainly become an intergral part of our days here. I was definitely skeptical at first, with Clayton having such a short attention span, but he looks forward to our reading time each night with great anticipation! So head over to Kidz and read my full post . . .

Sunday, January 03, 2010

Seven Months

Jackson is changing by the day! He is so social and in general, he's just a little stinker!! A busy little bee, he's wanting to touch and hold everything and is having lots of fun exploring all of his toys he received at Christmas. He sits up for short periods of time, and crawls backwards---wait, it's more of an accidental scoot than an actual crawl . . . and he's already jealous of any time we're spending with Clayton. It's interesting having two boys who would prefer to ignore each other and would prefer everyone else follow suit!

Tuesday, December 29, 2009

Security Item

When Clayton checks into the hospital, they always ask if he has a "security item." And for Clayton, his security is simply Daddy and Momma (in that order). Jackson, on the other hand, has decided no blanket or Teddy will do--he only needs his bottle to rest easy!
Since weaning off the b.reast, he has quickly become attached to his new source of food. The look he used to give me is now reserved for his bottles! And it makes no difference if he's eaten lately or not--if he sees a bottle, he nearly hyperventilates until he gets it in his hands. And for that matter, he covets anyone's drink! Brian and I have to almost drink in secret in order to keep him from throwing a fit! But if we do drink in front of him after he's just finished his bottle, I just hand him a sippy cup of water so he can get used to drinking from it. Hopefully this new found love for the bottles will easily translate to sippy cups!

Monday, December 28, 2009

Christmas Morning

We had a really great Christmas this year! Clayton was actually interested in Santa Claus for the first time and Jackson being here made it really seem like we had "family unit."

Clayton loved tearing into his gifts this year, and Jackson just wanted to lay in the floor and chew on wrapping paper!

Santa brought electric drums for Clayton and a little red wagon for Jackson. Clayton was all about the wagon and couldn't wait to take a ride. It was frigid outside, so they had to settle for riding around the house. We took a ride outside Saturday, but the cold nearly froze us.

Yes, I was there in all my pre-shower glory:
Jackson is really getting into climbing all over Clayton these last few days. Clayton does his best to tolerate it, but I know he's wondering why he has to give up his personal space!

Santa forgot to put the seatbelts in, so Clayton had to help Daddy with the job:

Jackson loved the wagon as well--he was so excited he nearly popped out a couple of times--glad we had him tied down!

Friday, December 25, 2009

Merry Christmas!

God rest ye merry gentlemen,
let nothing you dismay!
Remember Christ, our Saviour,
was born on Christmas Day!
To save us all from Satan's power,
when we have gone astray.
Oh, tidings of comfort and joy,
comfort and joy!
Oh, tidings of comfort and joy!

Wednesday, December 23, 2009

Weight Check: Six and a Half Months

13 pounds, 1.5 ounces

After two weeks on formula, Jackson is definitely putting on the weight! His little face is filling out and he seems much happier and content after eating. One thing's for sure though: he is still on the breastfeeding schedule. He still wants to eat every two to two and a half hours and when he sees the bottle, he acts as if he hasn't eaten in days. I'm thinking he for sure gets that from his Dad's side of the family!

Tuesday, December 22, 2009

Expecting the Miracle

It's been two months since I began diligently praying for the BIG MIRACLE for Clayton. I've also asked many prayer partners to once again remember to not only pray for the little things involving Clayton's health, but to pray for complete healing of his body. And I'm happy to report that I'm more hopeful than ever that God will honor our prayers! It seems the matter of faith has come up in many conversations I've had lately, and it was even a topic discussed in our Bible Study class this past Sunday. And as it just so happens, FAITH is one of my spiritual gifts! I told Brian last week that I seriously woke up each morning expecting that day to be the day Clayton will walk! And I've never been so optimistic about something so farfetched in my life! (Reminder to self: while farfetched to the human race, it is nothing for our Lord!) So while I'm so used to settling for what is given, this time I'm definitely stepping out in faith in believing his healing will happen for all to see. But here's where it's different this time: each morning I get Clayton out of bed and he is still just as spastic and tight as ever, I don't get down and out about how God isn't answering our prayers, I just assume he's planning for tomorrow to be the big day instead!

Saturday, December 19, 2009

Christmas Program

The kids at church put on their annual Christmas program this past Sunday. And even though Clayton knew every song by heart, he preferred staring at the crowd instead of singing. Even so, I was able to capture one shot of him singing his favorite: Go Tell It on the Mountain!

My friend's son, Brandon, is always eager to help Clayton at church. I love that little guy--he is Clayton's right hand man. . . literally!

And here's a shot of the A.V. guys:


Friday, December 18, 2009

Flashback Friday

Christmas 2004: Our first Christmas at home together!


Thursday, December 17, 2009

Little Drummer Boy

Clayton is so into the drums right now. He used to talk about the guitar, but now when he hears a song he likes, he immediately acts like he's playing the drums. So Brian pulled out the toy drum Clayton's had for several years and attached it to his chair. He is loving it! He especially loved getting to play with Brian and my brother!

Tuesday, December 15, 2009

Day 196

Today, Jackson is 196 days old. Why do I mark today of all days, you ask? It's simple. Clayton spent 196 days in the NICU. Can you believe it!? If Jackson had done the same, today would be the day we would bring him home. And knowing this makes me so sad for Clayton! So sad for all the time we missed with him! Yes, we were there in the NICU with him, but he wasn't AT HOME with us!


I am SO THANKFUL we didn't have to live through the NICU experience again. And I'm especially thankful Jackson didn't have to live through it. When I was looking back through Clayton's scrapbook of his first year to get these pics out, I couldn't believe how many times my journaling was about the noise, lights, and distractions. Can you imagine coming out of the quiet of your mother's womb to the continous noise and light of a NICU for the next six months SOLID? Wow. It's no wonder it took him a whole year to even start feeling good in general.

Thank you, Lord, for allowing us all to be together from day one. It is such blessing to be with my babies here at home, without the audience of the hospital crowd and without the distractions.

Sunday, December 13, 2009

He Looks Innocent Enough

But that first tooth cut through this week and the second is on its way. He has been quite the little stinker these last two days! I'm open to suggestions on how to pacify him--the usuals just don't seem to be working!

Friday, December 11, 2009

Flashback Friday

Christmas: 1980-something
The best gift Santa ever brought my brother and me: a go-kart. It was the neighborhood transportation for years and we ran the wheels off of it! I can't help but notice my new cowboy boots and lovely legwarmers--I thought I was so fashionable . . . NOT!

Thursday, December 10, 2009

Six Months (+ 7 Days)

11 pounds, 8 ounces
25 1/4 inches long

Yes, he's a little guy! He's officially gained 3 whole ounces since his four month check-up. And while he has been eating constantly since he was born, it seems to disappear once he swallows it. I started him on baby food at five months and even though he is eating lots of fruits and vegetables, it still hasn't seemed to put much weight on. I did know that for the last couple of weeks my milk has been dropping off dramatically, so I decided to start weaning him from the breast. My original goal was six months, so I did make it that far--I just wish I could have made it the whole first year. But I definitely didn't want to starve the boy!

I knew when I took him to the doctor yesterday they wouldn't be happy. I saw the nurse practitioner and she was definitely a bit concerned. I'll be mixing the formula at a higher calorie rate and she wants weekly weight checks. :EEK!: She probably thought I was nuts--I'm really not all that concerned with it. I feed him ALL. THE. TIME. I can't help it if he isn't gaining weight! Maybe I just have little babies, preemies or no! I did tell her that I'm coming into this with a skewed perspective. I do not want to pile calories on another child just because people think that all babies need to be rolly-polley fat. Granted, he'll be burning calories much faster than Clayton ever has, but I still don't want to get in that position of regretting pumping massive calories into him.

Otherwise, he is doing WONDERFUL! His two bottom teeth just cut through this week, and he is totally into his surroundings. Still wants to be with Momma all the time, but I'm fine with that! =) He wants to socialize with everyone, just wants to do it from my lap!

Tuesday, December 08, 2009

A is for ASHLEY!

Continuing with our letter of the week theme, we moved on to the letter A (short vowel sound) last week. And much to my chagrin, Clayton never would identify the letter, even after the whole week of practice. All he talked about was little C, big C, O, or T. All I can say is at least he realizes we're talking about the letters in his name and sticks to those!!
Online Resources:

On the bookshelf:
How to Make and Apple Pie and See the World
The Apple Pie Tree
Animals Should Definitely Not Wear Clothing
Amazing Airplanes
What's Inside an Ambulance?
Astronaut Piggy Wiggy

Song of the Week:
The Ants Go Marching


Our science lesson was on astronauts, but by far Clayton's favorite lesson for this letter was social studies: we read What's Inside an Ambulance? and it was definitely right up Clayton's ALLEY. We had to study every. single. picture. Especially the one with the stretcher (a bed with wheels--wheels ALWAYS get his attention!). Oh, and the page about the oxygen was a favorite as well. I know his little mind was working overtime processing all the pictures of the medical equipment . . . it's unfortunate that he is so familiar with these things at such a young age, but you never know, we may have the beginnings of a medical career forming!!

Sunday, December 06, 2009

10-4, Good Buddy!

Talk about a good investment! Clayton is loving these walkie-talkies! We have to talk on them all. the. time. Even if we're in the same room. :) He's even learning the lingo--10-4, what's your 20?, you know, the great conversation starters!
There are so many gadgets out there that are *almost* adaptable enough for Clayton, but we can't get them just right for him to use completely on his own. But since he can use these without having to coordinate pressing his fingers, they are perfect. Thank you walkie-talkie people, for including this feature!


Saturday, December 05, 2009

Brought to You by the Letter L

Last week we focused on the letter L. Unfortunately, I didn't do as great a job with this letter as I did with C--the Thanksgiving holiday kind of through a wrench into things, but we still did school every other day that week . . .
Online resources:
On the bookshelf:
The Grouchy Ladybug
Andy and the Lion
Eli
The Little Red Lighthouse and the Great Gray Bridge
Leaf Jumpers

Song of the Week:
Jesus Loves the Little Children


Early in the week, each time I asked Clayton "what letter is this?", he usually said T or C. And then later in the week, he changed his answer to "down and across." Now, that's technically not the name of the letter, but at least I knew by that answer that he had been listening to me!!

Friday, December 04, 2009

Thursday, December 03, 2009

Happy Birthday, Granny!


Wishing a very Happy Birthday to my Mom!

Tuesday, December 01, 2009

Just Push!

It's so hard for kids to know how to interact with Clayton. But some of them figure out real quick that Clayton's not hard to entertain--just keep him on the go and in the middle of the action, and he's happy! I've noticed the last few times my nephew has been with Clayton he's taken to this job with no complaints. Thankfully, he's at the age when pushing anything with wheels is considered fun--I hope it lasts!