Scary

So have you heard about Amelia?  If not, her mother tells the latest in their story right here.  

I have to admit that even though Clayton has never been deemed "mentally retarded," he is "developmentally delayed," and as a special needs parent, this scares me to death.  It's not a "big and bad" insurance company that's telling Amelia no to a life-saving operation.  It's the doctor(s) who is indeed charged with keeping her alive!  Please tell me I'm not the only one who sees the irony in this?  

I couldn't put my finger on just why this rubbed me the wrong way (child needing a transplant put aside), but when I read Katy's post, I found myself nodding in agreement the whole way through.  I'm like her--I've seen a whole host of people in my life who were [supposedly] of normal intelligence whose "quality of life" wasn't near that of Clayton's!  Talk about someone who is living!  And he is enjoying every minute of it!  How many of us would be able to say we enjoy life as much as Clayton if we were suddenly limited by his disabilities?  I don't know if I could . . .

At any rate, as a parent of child with Cerebral Palsy, it is frightening what may lie ahead in the world of medical care and our ability to access it affordably.  Just another reason I'm praying diligently for a miracle in Clayton's health.

ETA:  I just read a few of the comments on Amelia's mom's post.  Had to stop.  Absolutely.  Incredible.  I was reminded that yes, some people really do feel like kids with any "defect" don't count and should be done away with as soon as possible!  God help them if they ever become the parent or grandparent of a child with disabilities.