We saw Dr. Berlinski yesterday (Clayton's Pulmonologist) and he gave me the go ahead on taking more drastic measures on weaning Clayton off his oxygen! Although we've known Clayton can handle small stints off the oxygen (since he pulls his cannula off all the time!), we've been waiting for the official okay from a doctor--VERY BIG NEWS! Right now it's just two hours a day, but eventually we will work up to four hours if he can handle it and then we'll go back for another evaluation. He just does so well during the summer, there really is no reason to hold back. In the summer, he does better on breathing in general, and even with the theraputic feeds. He is better about trying things in his mouth simply because he's not congested at all and not fighting to breath as a result of being sick.
And so here he sits withOUT his cannula--isn't he even prettier without that thing!? And don't tell him I said pretty when he's 15! His oxygen is still running in the high 90s, so he's handling it well. I'm hoping he keeps up the good work! Heaven knows all this talking he's been doing should be giving his lungs a great workout! His breath support is better than ever and I really think he's ready for these baby steps . . .gives us hope for the bigger steps!
And as a side note, Dr. Berlinski had to suffer through a picture for me. (I explained that I was a scrapbooker and I document everything in Clayton's life). I've decided to do a mini-album of Clayton's doctors, and he just happened to be the first victim! He was a little upset because he didn't have his tie on, but I told him he was dressed perfect since they both had on blue--I'm such a nerd scrapbooker! :)