Yesterday, Clayton struggled all day long with his oxygen levels. I suppose he's just had way to much excitement with all the walking he's been doing. We are going to see the pulmonologist tomorrow morning for a chest x-ray and bloodwork to see if anything's going on. But in the meantime, when I got out of the shower this morning, he was lying in bed with his cannula off and he had a decent oxygen reading. WHAT'S UP WITH THAT?
Talk about wishy-washy! There is never any rhyme or reason to what's going on with his lungs. All I know is he just can't deal with a lot of stimulation without having lots of down time afterwards. I suppose we'll just have to get used to taking life in spurts in order to keep his little body from overdoing it. 
2 comments:
prayers for all of you- hope you find something out! At least today is better!
ck
Such a roller coaster ride for you all. I'll be thinking of you and hoping things are sorted out.
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