Clayton had a good afternoon yesterday and even got to go downstairs to watch the cars in the front of the hospital. He was still acting quite weak, but at least we could see a little spark in his eyes. The doctor came in and visited with us after she studied his old CT scans and shared with us several options.
Clayton's shunt is overdraining. His brain is just not used to this low pressure environment. Sometimes people can adjust to this change given time, and sometimes another surgery is involved. The problem is there are many different surgical options for fixing the overdraining, and not one is the clear cut answer yet. So after much talk and thought, the neurosurgeons asked us to wait it out for two more weeks and see if he can make the adjustment. This morning the residents came in to discharge Clayton with orders to limit his activity and have him lay flat as much as possible. Didn't sound fun and made me anxious, but we were willing to do it since they were offering solutions if that didn't work. (Not what we were getting at ACH).
After they left, I got up to go to Clayton's bed (since the residents always come at the crack of dawn when I'm still in bed). Clayton's pillow had something all over it and it didn't take long to discover that his incision was leaking puss (sp?) all over it. Called the docs back in, they took a culture and immediately ordered antibiotics. Problem is, Clayton's I.V. quit yesterday and they had only gotten that one after five sticks. The doctor really wanted I.V. antibiotics, but was willing to do oral to keep Clayton from being stuck again. But I think that if his culture comes back positive for something, a PICC line is coming in the near future.
Since then, Clayton has been pretty lethargic and the spark is gone again. He's running fever and his heart rate is pretty elevated. It's just been up and down constantly for these last two weeks. We know he still needs to be here (especially with how he's acted this morning), but I'm really missing my regular life at the moment.
So as my mom and I used to say in the NICU . . . . . could someone please just
FIX THE BABY?!!!!!!!